Wednesday, January 18, 2017

Me Time

I have had 3 days of a temporary reprieve with Eric going to his day program. I have been able to relax and get a few things done. I was even able to get through most of my to do list today.

My my best work today was being able to get service for the washer and dryer on Friday even though I called today. I do admit to get the appointment on Friday, I did use the sick kid who makes lots of laundry card. I really hate to use it, but 2 weeks without a dryer would have broken me. I figure by Friday the laundry room will be hip deep in laundry, even with pulling out the things that can be washed and hung up to dry.

Maybe after my day off tomorrow, I can do some de cluttering on Friday while I wait for the service appointment. Where to start, so many little things which add up to big things if they are ingnored.

Thursday, January 12, 2017

Spinning

Today I got out of the house and left they guys at home. I went to Grandma's Spinning Wheel and did a marathon for me spinning secession about 2 1/2 hours. I finished one bobbin and wound the yarn on my knitty noddy. Then I started some white merino that I am going to barber pole onto some red. I just have to finish filling up this bobbin which should be done soon.  I shall see how sore that I am tomorrow.

My wheel has a slight warble that needs to be fixed. If I can figure out how to get to the screw I will be just fine. The problem is that it requires a special 4 side head and my Philips that I can maneuver in to the slot are 6 sided. I will solve this, but not tonight.

Wednesday, January 11, 2017

Better Today

My body is so fond of reminding me if it's not 30 anymore. Take yesterday for instance, my workday started off at 3:30 AM and did not finish till 10 PM. Because Eric was sick it was a very physically intense day for me. Today my body is reminding me of that. Around lunchtime today my body said it's naptime.

At least Eric is feeling better today. So I spent some time playing catchup around the house. I also started a new wool charity hat while I was sitting with Eric. The down side of stash busting is the little odds and ends of yarn accumulate so quickly. The good news is that they make perfect colorful hats for kids. The wool bag is overflowing right now so 2 or 3 hats should solve that problem.

Tuesday, January 10, 2017

And Repeat

Eric's post viral asthma kick in with vengeance. I feel very tired after being up since 3:30am and spending most of the day helping him sit up to keep his airway clear.  I have not even gotten through the mountain of laundry that he made since last night. I feel so tired and discouraged because I could not make him feel better today.

If tomorrow starts off like today we will be heading to the doctors. I  am hoping for a much better night tonight and a better day tomorrow. I hope everyone else had a much better day.

Saturday, January 7, 2017

Oh, Joy

One of the things that I don't enjoy about being a special needs mom is dealing with the insurance company. Yes, there are a lot of intelligent  people who work for the medical insurance company, but why do I seem to get all the dunderheads?

The annual denial letter for formula and supplies came today. Some of the more redundant things that I have had put in the notes at the top of Eric's chart include when the g-tube was placed 15 years ago and why it is necessary. So it annoys me to no end to be asked for "Documentation" that Eric has a feeding tube. Is this the sole source of his nutrition, they want to know why we have not gotten him off the feeding tube yet. What is his diagnosis that makes the feeding tube necessary He has had the same diagnosis since he was 3 1/2 they just don't change like magic. The name of the formula... duh the same one he has been on for the last 15 years. An evaluation of his nutritional needs, really!!!

To boot UnitedHealthcare will not pay for supplies until we provide this information again.  They have also decided to make us do this every 6 months, really!!! I can not think of a worse harassment of parents of sick children.

Sadly there are only a few relevant things in the letter, Eric's height and weight and a new prescription. The rest is just laziness on the part of the reviewer. After 15 years of this crap, I am beginning to think they do this to us because a certain number of families and doctors will just give up and pay for these medically necessary supplies out of pocket. Aren't the profits and bonuses high enough for the insurance companies yet?

A heads up to everyone. I will be dealing with this crap on Monday, so its not you it's United Healthcare.

Thursday, January 5, 2017

A Lot of Sleep

I find it amazing what 10 hours of sleep twice in one week can do for me. I run on an entirely different level than when I get 4 hours of sleep a night. To that end I have a lot of housework and laundry to catch up on tomorrow, yes the laundry room hit hip high. Thank goodness I am not any taller. So I started the whites tonight because they take 2 1/2 hours to wash with the energy efficient washing machine.

If I say good night now I can still get 7 1/2 hours of sleep tonight.

Sunday, January 1, 2017

Happy New Year

From our family to you and your families we wish you all a very happy, healthy, peaceful and prosperous New Year.  May 2017 be a good year for all.

Best wishes,

Sheri, John, Teri, Tej and Eric