A Surreal Day

I spent the day trying to fix things in my realm. My success rate was about 50%.

On the easy things like John's ink stained shirts I was told that "he needs to stain one more shirt, because the price break is at three shirts." Does this mean that I was suppose to go home and stain one more dress shirt and come back for the better price? I am taking this as a win, the shirts will be ready at 5pm tomorrow.

I got gas for the van before it ran out. Breakfast out at 10:30 am and a lunch of a slice of cheese and some crackers eaten at stop lights at 2:30 pm, I did not mind hitting every red light, at least I got some lunch before I picked up Eric. To make it even better John brought home dinner. So on food I will call it a win.

I thought I had a win on laundry getting three loads finished today. Eric had other plans. He filled his personal laundry basket twice today. So I added a fourth load of laundry tonight. A break even.

On the problem with Eric's formula. The people at Nestle's Ethereal Nutrition were wonderful. At least I found out that there was no recall or plant issues. I even got a case file number to give to the people at Corman.  Corman is an interesting company to say the least. The first person I spoke to swore that Eric had not had a delivery since 2014 and of course the formula went bad after that amount of time. The second person I talked to at least found Eric's file. She would not replace the 8 cases of formula that were mishandled in transit. This resulted in the formula curdling like cheese. Rendering the formula useless for Eric or anyone else. That they would instead send a refund to United Health Care. Insert whatever swear words you want here.  She sent one expedited case so that Eric could eat tonight and the rest of the week. The  rest will be here by Friday. They would also not pick up the bad cases of bad formula, so they sit in the living room. Net loss 8 cases of formula  and no reserves for when things go south with the paperwork snafu's that always happen. This is not even close to break even.

I thought that I had a break even with the issues at Eric's day program. I thought that everything was fairly settled. My personal feeling is that we will never see the program fees that walked away.  So I wrote a check for the missing money and this months fees. Handed the missing paperwork that has been filled out countless times to a reliable person. So I will only write check from now on and have everyone sign for the paperwork they receive for Eric. So I thought that I was good until I opened My email at 5:00 pm only to find a demand for the the money owed,almost like a collection letter. I am sincerely hoping that this was just a lack of communication on their part, I hope that the check I wrote at 9:45am is not lost already. I also doubt that I will see a full accounting of where Eric's fees landed, because he was either sick or stayed back on most of the field trips.  You decide.

No time to make three pairs of earrings for tomorrow. That makes me sad, but I will try to get them made tomorrow for Friday.

Tomorrow will be better.

Oh, Joy

One of the things that I don't enjoy about being a special needs mom is dealing with the insurance company. Yes, there are a lot of intelligent  people who work for the medical insurance company, but why do I seem to get all the dunderheads?

The annual denial letter for formula and supplies came today. Some of the more redundant things that I have had put in the notes at the top of Eric's chart include when the g-tube was placed 15 years ago and why it is necessary. So it annoys me to no end to be asked for "Documentation" that Eric has a feeding tube. Is this the sole source of his nutrition, they want to know why we have not gotten him off the feeding tube yet. What is his diagnosis that makes the feeding tube necessary He has had the same diagnosis since he was 3 1/2 they just don't change like magic. The name of the formula... duh the same one he has been on for the last 15 years. An evaluation of his nutritional needs, really!!!

To boot UnitedHealthcare will not pay for supplies until we provide this information again.  They have also decided to make us do this every 6 months, really!!! I can not think of a worse harassment of parents of sick children.

Sadly there are only a few relevant things in the letter, Eric's height and weight and a new prescription. The rest is just laziness on the part of the reviewer. After 15 years of this crap, I am beginning to think they do this to us because a certain number of families and doctors will just give up and pay for these medically necessary supplies out of pocket. Aren't the profits and bonuses high enough for the insurance companies yet?

A heads up to everyone. I will be dealing with this crap on Monday, so its not you it's United Healthcare.