Bits and Pieces

I have finally found a pair of pants that fits after a 2 year search. This is very good news.  As usual the there is a down side.  I can't find another pair of pants with the UCP code 7-06254-39523-8 at any Macy's store in Tucson or on line at Macy's.com.  If anyone from Macy's reads this blog post please consider restocking this style of pants. 

I started a new round of deep cleaning this afternoon and have already filled one box. Hopefully by next weekend I will have a few more boxes filled and dropped of at the Goodwill.  I also had to tink a scarf that was halfway finished, because it started unraveling at the bottom.  So much for starting a scarf while watching a movie.  

Also keep those tabs coming in.. Eric has just dropped off the latest batch to our Tucson Ronal McDonald House. For those keeping track it was 25.9 pounds of tabs.  I think that my dad would have been very proud of Eric for his commitment to collecting tabs to help the sick kids. 

Memorial Day

My heartfelt condolences go out to all the Gold Star Families whose loved ones paid the ultimate price for the freedoms that we all enjoy today.

I would like everyone to take a few minutes out of your day to remember these heroes who will never enjoy time with their families again.

A Little Mishap

There are certain things in life that must be done methodically every time that they are done or things go wonky rather quickly. Take Eric's new lift for example. It is mounted to the ceiling with the lift being operated by a pneumatic air compressor which is operated by a switch. We ask everyone who uses it with Eric to make sure that it does not get tangled. Tangles always cause problems.  I noticed that this mornings aide did not put the lift back on the charger, but failed to notice how badly tangled the wires were left until it was too late.

Do to tangling in the wires the pneumatic motor became disengaged, is simpler terms it broke at a most inconvenient time. Yes half way down. This left Eric miffed to be stuck in mid air. My tall guy was out and about an hour away. I am to short to reach up and fix it. The bed was to far from the problem to safely fix the lift. It would have been a very embarrassing call to 911. I can not lift Eric by myself.  I finally found a step ladder so I could reach up and fix everything. The whole incident took less than 2 minutes, but to me it felt like hours. Eric's glares did not help much either, but I could not blame him, his ride broke midway through.

This will result in everyone who works with Eric to be retrained on the lift. I personally hate redundant training, but will do this because it is a safety issue.

By the time everything was fixed and I was calm enough to drive we had missed the movie that we wanted to go to across town and hurried to catch a later showing at another theater. By the way we went to see Zootopia. It is a must see movie for this summer.

By the way as long as we are talking about retraining, I would like to mention that a movie theaters the handicapped seating is for those who truly need to use them. For example people in wheelchairs and their companions, people who use walkers or canes and have other mobility issues. You just do not know how hard it is to move a wheelchair through those heavy doors to go to the other side. I think it would be much easier to move your able body self and kids a few seat and show some manners. I am off my soap box now.

Just A Thought

I have thought long and hard before writing this blog post.  I don't want to sound preachy or holy than thou. I just want to put forth this idea.

I know we all live very busy life's. Most of us have more on our plates than a reasonable person would consider prudent. We are in a hurry to get everywhere. We live in our own bubbles. Who has time to pull over for a siren, even for a minute? What difference would my minute make?

What if I told you it could make a world of diffrence for someone outside of  your bubble? Wouldn't be nice if everyone pulled over? Maybe even say a prayer for those on the ambulance for a speedy recovery. Pray that the Public Saftey Officer returns safely to their families at the end of their shifts.  I feel that the power of prayer is very powerful. We can make a diffrence by one act at a time. I know that there are a few atheists who read my blog and think the whole idea of prayer is useless at best. For you all I ask is that you pull over for sirens because it is the right thing to do. 

The thoughts and opinions are my own. If you agree with this blog post please feel

free to share the link. If you would like to publish this post elsewhere please contact me, arrangements can be made. 

Have a nice weekend and enjoy your families. 

The Bear is Off Limits

Whatever you do don't blame the bear. Let me back track a little bit. At 3:30 this morning Eric was a little cranky. His favorite bear was wrapped snuggly in his blanket, while a very cold Eric was trying to cover himself with his pillows. So I talked to Eric's bear about stealing Eric's blankets in the middle of the night while I was getting Eric resettled in. This morning that included a change out and some physical therapy. By the way John repeated this exercise a little while after I finished, but he did not lecture the bear. So daddy was golden.

By the time I got Eric settled again 30 minutes latter, he was really mad about me talking to his beloved bear like that. He was still mad when I dropped him off at his day program.  He would not even let me give him a kiss goodbye. It took Maggie a little bit of persuasion to send a smile picture of himself to me.

So the lesson learned today was never ever blame the beloved stuffed animal. No matter if they steal the blankets in the middle of the night and leave your child cold, they are still off limits for a mommy lecture.

By 3:00 this afternoon he was no longer mad at me and let me drive him home.

Tuesday's Unplanned Day

Today started at 5:30 am with Eric not feeling well.  That of course threw my plans for the day in the blender.  So I spent the day bouncing around between Taking care of Eric, laundry, cleaning and spinning.  

Talking about spinning, I finally finished the very soft and pretty 15 micron merino wool dyed by my friend Jimmy.  It was the first yarn that came off my spinning wheel since the December 7, 2015 car accident.  I guess it shows that I am making progress on the road to recovery, albeit very slowly. 

Monday

My body and I were at war most of the day.  I even managed to snap all the tendons in my right hand while wearing my hand brace today.  I am just so talented like that. So needless to say not much got done today.  At least I got some spinning today.

A Bad Night

As I write this I am waiting for Eric to fall asleep.  I woke up a little over 3 hours ago with bad joint pain. Just as I had managed to loosen up the joints in my hands, when Eric decided it was time for a complete change out.  Twenty minutes later he is still kicking off the covers and crying when he gets cold.  I have been to his room 4 times in the last hour to recover him.  

I am now officially tired and cranky. So today's word of the day is NO.  As Teri likes to point out, NO is a complete sentence.  

A Funky Day

I just know the day is going to be a bit off when I have wheelchair repairs before I have had time to get dressed. To make matters a little more rushed my favorite set of Allen Wrenches were not where I wanted them to be. So I had to get the box of spare Eric equipment parts from his room. Sometimes pieces of equipment come with some spare parts and tools.  I am also still training a new aide for Eric, yes its million question time yet again. So getting Eric to his day program only 30 minutes late was not bad at all.

Once we got to Eric's program, I noticed that the chest positioning strap was not quite right. So I then readjusted all the straps, so Eric does not have to work as hard sitting up. I then took a few minutes to relax before I went to the gym for my 10 minutes planed on the elliptical. I managed to get 15 minutes done.While I was cooling down after my workout a lady noticed my knitting and said that she was having a hard time with it. I asked if I could help her and she then proceeded to try to get me to cure her hands of arthritis. I told her she needed to talk to her doctor or a specialist about her hands. This was repeated several times, I felt like I was in a loop. I was just about to suggest duct tape, it fixes everything, right? When her personal trainer walked up. How do these people find me? What part about talk to your doctor is so hard to understand? I do admit that I am a stay at home mom and I can do a lot of diffrent things, but I am not a doctor. I don't practice medicine without a licence. If you are getting your medical advice from strangers on the street you have more problems than just the arthritis

 Then home to catch up on paperwork. I was only 10 percent through with my paperwork before I need to take a nap. Somehow flare ups make me tired. I woke up with just enough time to eat a quick lunch before I went to get Eric. The rest of the afternoon was taken up by Eric, cooking dinner, cleaning and relaxing.

On Track

I got to hang out with some friends today.  We sat around crafting and talking.  This was followed by Physical Therapy which I hope is almost over.  Then some shopping, a quick lunch and a nap.  I picked up Eric so he could supervise the cleaning and laundry. He actually was worried that I did not have enough laundry and made more for me to wash today.  

I was working with a new aide for Eric this afternoon.  When she tried to rush through things, I explained that Eric's schedule was like a concert.  You don't start with the finale.  So we are working on the rythem of Eric.  I think things will go well.  We just need to practice, practice and a little more practice. We will not get to Carnagie Hall, but Eric will be happy with a smooth routine.  

Tomorrow is being set aside for paperwork. With any luck I will be caught up by carpool time.  

Slowing Down

I have been in a crazy mode since the accident on December 7. 2015. My life just took on an agenda of its own and I tried to keep up. I can really feel the effects it has been having on my body. So I am taking Teri's advice that "No" is a complete sentence with no explanation necessary. I am trying to do things that relax me and that I want to do.

I took the weekend off, as much as I could at least. The guys took me to Dim Sum at China Phoenix on Saturday. Out to dinner with John on Saturday and Sunday nights. Lisa, Eric and I also went to see the movie Mothers Day on Mother's Day. If you need to see a great movie that will keep you laughing most of the time, this is the on to go see. Yes, it is a chick flick. Yes the weekend did include 5 loads of laundry, I am beginning to think in his own way Eric is showing me his love.

Everyone gave me flavored teas to help with a healthier lifestyle. I still have not had a soda since the flu bug a few months ago.

I also have been knitting more, which is not a bad thing. Well it might, because I have a lot of knitting and weaving to do before I really need to shop for yarn. I spent some time spinning today. I am finally unwound enough to try sleep so wish me luck.

A Couple of Words

Eric is not a kid who uses many spoken words. So I thought that I would share his latest gem. We we both napping after the long stint of being awake when Eric was sick.

I was just waking up from my nap when Eric said,

"I'm alive"

I just wish I knew what the rest of the thought was about. I just can not prompt Eric to talk when he does not want to or can not manage speech.

What I need is someone to invent a machine that translates thoughts into the spoke word. Any takers?

A very Long Day

Eric got sick right before bedtime last night. It was a very long and eyrpy night. On the bright side as of bedtime tonight he is back on formula. I also worked on a bag of UFO yarn, finishing 1 charity hat and starting another. I will finish all the projects in this bag first.  I have decided that I need to knit or redisposition the yarn to other projects in any project bag that I pick up. This is so that I don't have bags full of yarn 6 months from now with no plans or pattern attached.

I managed to get all the eyrpy laundry washed. I have decided not to fold the laundry today. As long as it is clean folding the laundry was not an issue today.

I am sorry if this blog is choppy but I have been up almost 40 hours and am really feeling tired. With a little sleep tonight all will be better in the morning.

Ranting Again

My day was going really well then....

The formula supply company just called and is trying to change the formula AGAIN to save money. At least they were upfront about it this time. I thought we had this resolved. They even acknowledged that they have the doctors script. We have to try at least a partial case before we can say no. I swear that Amazon may become our formula supplier if this keeps up. Then bill the health insurance company for what they are required to pay for by state law. They don't care about Eric at all. Just their @#%$#@# contract and nickle and dimeing the patients to keep their bottom line. If they can not break even on on the contract that they bid on, then maybe they should not have bid so low on the contract with the insurance company. Or, maybe the insurance companies should give the companies a reasonable operating budget over the cost of supplies. Either way they need to put Eric first.

Asking us to try another formula that might possibly do Eric harm is beyond the scope of my thinking right now. We have just gotten him almost back on his feet from the last formula fiasco. What makes a bunch of bean counters and paper pushers think that they know Eric as well as his doctors. Just because something is similar does not mean that it alike and will work the same. Just think about the possibility of of using oranges instead of apples in an apple cobbler, they are both fruit so it should work, right? I really like the comment that even though it is not listed on the label this new formula has fiber, right what about FDA labeling regulations?

So I talked it over with John. We decided that the best course of action was to call back and ask for everything in writing. I was put on hold for a few minutes. They came back and said the formula change was just a" suggestion". I decided to go with what the doctor ordered and long story short, they will continue to send out the formula that the doctor ordered. I now feel like a wet rag. I think that I will spin for a while to get back to my center. Then spend the evening knitting after dinner.