And Repeat

Eric's post viral asthma kick in with vengeance. I feel very tired after being up since 3:30am and spending most of the day helping him sit up to keep his airway clear.  I have not even gotten through the mountain of laundry that he made since last night. I feel so tired and discouraged because I could not make him feel better today.

If tomorrow starts off like today we will be heading to the doctors. I  am hoping for a much better night tonight and a better day tomorrow. I hope everyone else had a much better day.

Oh, Joy

One of the things that I don't enjoy about being a special needs mom is dealing with the insurance company. Yes, there are a lot of intelligent  people who work for the medical insurance company, but why do I seem to get all the dunderheads?

The annual denial letter for formula and supplies came today. Some of the more redundant things that I have had put in the notes at the top of Eric's chart include when the g-tube was placed 15 years ago and why it is necessary. So it annoys me to no end to be asked for "Documentation" that Eric has a feeding tube. Is this the sole source of his nutrition, they want to know why we have not gotten him off the feeding tube yet. What is his diagnosis that makes the feeding tube necessary He has had the same diagnosis since he was 3 1/2 they just don't change like magic. The name of the formula... duh the same one he has been on for the last 15 years. An evaluation of his nutritional needs, really!!!

To boot UnitedHealthcare will not pay for supplies until we provide this information again.  They have also decided to make us do this every 6 months, really!!! I can not think of a worse harassment of parents of sick children.

Sadly there are only a few relevant things in the letter, Eric's height and weight and a new prescription. The rest is just laziness on the part of the reviewer. After 15 years of this crap, I am beginning to think they do this to us because a certain number of families and doctors will just give up and pay for these medically necessary supplies out of pocket. Aren't the profits and bonuses high enough for the insurance companies yet?

A heads up to everyone. I will be dealing with this crap on Monday, so its not you it's United Healthcare.

A Lot of Sleep

I find it amazing what 10 hours of sleep twice in one week can do for me. I run on an entirely different level than when I get 4 hours of sleep a night. To that end I have a lot of housework and laundry to catch up on tomorrow, yes the laundry room hit hip high. Thank goodness I am not any taller. So I started the whites tonight because they take 2 1/2 hours to wash with the energy efficient washing machine.

If I say good night now I can still get 7 1/2 hours of sleep tonight.

Happy New Year

From our family to you and your families we wish you all a very happy, healthy, peaceful and prosperous New Year.  May 2017 be a good year for all.

Best wishes,

Sheri, John, Teri, Tej and Eric

A New Spot

The new couches were delivered today . They look very similar to the old couches that left the house yesterday. The new ones have power recliners, so that John will not have to rescue me when I am having a bad body day. I just have to remember that the power is there when I get up. Oh, did I mention that they are perfect for napping too?

Because of the way we set up the couches, I now have a dedicated place to put one of my spinning wheels again. The Lendrum DT is tucked in a corner so that I can leave everything set up. I am trying to decide weather I have room to add the Louet wheel too. I am worried that there might be too much sun in the second spot which could damage the wheel. So I will have to pay attention to the sun that hits the area. 

Down 2

I really enjoyed having a full house. Having Teri and Tej here was beyond wonderful, but the full house had to end sometime. As working adults Teri and Tej have limited time off.  John, Eric and I are really grateful that they choose to spend a whole week of their precious time off with us. Now it is time to go back to our everyday routine.

I have decided to work off the pound I gained while the kids were here doing more deep cleaning of the house. This is what I call productive exercise. Who knows, someday I might just finish with the house and move on to the garage. Only G'd knows when that will happen, real soon I hope, before it's summer again.

I always like to end on a very bright note. To that end I am getting my knitting mojo back. I even have enough in the finishing bowl to tag and bag some hand knits to night.

A Full House

I have everyone home for the holidays and aside from the roving cold we are having a great time. I love having a full house. We even got out to see the new Star Wars film Rogue One which was pretty good. We also saw Fantastic Beasts and Where to Find Them, I can't wait for the sequel for this one. Yes I know that there is no sequel that they have announced, but there are just too many story lines that were left open for there not to be one. 

Tonight I finally finished knitting the hat I was working on before my hands went wonky earlier in the year. I also surprised myself by doing all the finishing work in the finishing bowl. I switched from a finishing basket to a finishing bowl, because the bowl holds less. That means that I get things sorted and tagged sooner. 

While everyone is home I took a break from deep cleaning to spend more time with Teri and Tej. I just feel so lucky to have them in my life.