More Milestones

As we celebrate another milestone in Eric's life. I would like to ask you to help us reach more milestones in his life. There are two organizations that play a vital part in Eric's life.

First there is the ML4 Foundation. Eric's primary diagnosis is ML4.  Mucolipidosis Type IV (ML4) is a horrible genetic disease effecting children across the world. Doctors say that children with ML4 will likely never walk or talk, have a maximum mental capacity of about 18 months, go blind by twelve years old and live only into early adulthood. The mission of the ML4 Foundation is to promote and fund medical research to develop treatments and find a cure for ML4.

Any amount will help fund this research. Just think that in Eric's life time we have already found the gene mutation that causes ML4. We as a family know that anything is possible.

ML4 Foundation Donation Page

The second organization that we would like you to consider is the Tucson Jewish Community Center. Eric has been going to summer camp at the TJCC since he has been 4 years old. Over that span of time the inclusion program has grown from just a few special needs children mixed in with other campers to a full inclusion program with a wait list. The program has also evolved over the years to include a young adult program called Tag-Lit which is for high school age and older campers. Tag-Lit also has a year round program which Eric will transition to after high school and join the year round program.

This program is funded primarily through shrinking state dollars and grants. Any amount of money contributed to this effort would go a long way in helping Eric and his friends. Eric has been together with some of his friends for 17 years. I know it is very hard to believe that these wonderful people have kept the program going for so long.

Please use the pull down menu to the inclusion fund designation and this money will go to special needs programs and equipment at the Tucson JCC. They can stretch a dollar like no other organization I have seen.

Tucson JCC Donation form.

My Family and I would like to thank you in advance for your support. I would also like to thank you fror lending an ear over the years.. Sheri

ML4

As a lot of you who read my blog with regularity know that my youngest child Eric has ML4. You already know that a considerable part of my time is spent caring for Eric. I never thought that in my life time let alone Eric's that we would be able to find the gene that causes so many problems for Eric. Yet through the ML4 Foundations funding of research has help make that dream come true.  It would be nice to dream that in Eric's life time there was a treatment to slow or stop this life altering disease. This is a copy of a mass appeal fundraising letter that is going out this week. If you can find it in your heart and budget any help would be wonderful.


A clear link to the letter is ML4 Letter
In case you can't read the mailing address checks can be sent to

ML4 Foundation
719 East 17th Street
Brooklyn, NY 11230

www.ml4.org

Please feel free to pass this letter on to anyone who might be interested.
Have a wonderful weekend with your families.