There is one more thing that nobody tells you about autoimmune disorders is that I can be rolling along with my life and bam the next thing I know is that my body has decided to stop working as needed. There is no rhyme or reason as to when this happens. The autoimmune disorder does not care if I have plans for the day. That there are projects that I want to complete. There are chores that need to be completed.
I never know in advance what is going to stop working with me. How long this personal body problem will last. How much it will hurt. If I have a full calendar.
Will this wake me up in the middle of the night. It is now 1:00 am. I am waiting for the aspirin to kick in so the pain will go away. So I can get to sleep. Never mind that I need more sleep with a flare up to heal the flare up, my body does not care. This time it he flare up hit my hands and knees. So no knitting for at least a couple of days. The combination is never the same. No this does not make my life interesting. I get very frustrated with my Sjogren’s. Every autoimmune disease presents itself differently with flare ups. Depending on the severity of the flare up Sjogren’s presents it self differently with each flare up. This also makes it very difficult to get the right diagnosis and treatment.
I missed the last Sjogren’s walk because of non autoimmune body issues. Yes, I have to deal with other body issues besides Sjogren’s. So, I did not do my annual fundraiser for Sjogren’s. I know that there are a lot of different disease related fundraisers, because let’s face it, there are a lot of different diseases that need to be researched. In the United States, government funding for disease research is at an all time low. I won’t get political or name names here, but we all know who to thank for that.
So during this time of high anxiety, high inflation including food, gasoline and other costs, I would consider it to be a blessing if you would make a donation to the Sjorgren’s Foundation or any other health organization that includes your family members or friends. We are all in this together.
Thank you for reading my middle of the night rant and research funding request. This was typed using only my pointer finger, well because my hands are being quite cranky right now.
