Showing posts with label Taglit Day Program. Young Adults. Show all posts
Showing posts with label Taglit Day Program. Young Adults. Show all posts

Tuesday, November 19, 2019

Goodbye


 On Friday we said goodbye to our much loved son and brother, Eric. Eric was diagnosed with ML4 at a very young age, but we never let a diagnosis define our son or our family.  Instead we choose to teach Eric and his older sister Teri to embrace life and live it to the fullest.

Living life to the fullest for us meant exploring and enjoying the world, no matter what. And it meant finding things we all could enjoy as a family. It meant exploring museums where Eric could roll around freely without limits. And while he couldn’t always make out the details, Eric always loved being surrounded by the rich colors and sounds.

It meant family trips to Disneyland where Eric loved celebrating his Birthday. Eric loved birthdays so much. But above all else, at Disneyland we could be like any other family and enjoy the rides and deserts together.  Eric especially loved the rides where he could roll right on in his wheelchair. 

Eric also loved food, particularly pancakes.  Eric and his grandpa Al loved going to IHOP for their pancakes.  Grandpa Al would hand us his cane and take charge of Eric’s wheelchair so that they could get the perfect pancake table.

Eric’s favorite place by far though was in the pool, particularly the Hilton hotel in Phoenix because of the pancakes and the lazy river. In the pool Eric could move freely. The warm water always felt good to him, and he always disliked getting out. Actually that was true for both of our children, and John and I had quite the job wrangling both kids unhappily out of the pool. 

However, as hard as we tried, over the years Eric’s world became smaller, and he lost the ability to do more and more things. But he never lost his incredible smile or his innate ability to make the other around him feel better. He even collected tabs for Ronald McDonald house to help out other kids who were sick. We will continue to collect tabs in his memory because he had not yet reached his goal of collecting a million tabs. Tabs can also be dropped off at 2155 East Allen Road in Eric's name. And he was always there for his friends to hold their hands and help them.

Eric was an incredible son and brother, and we all feel so lucky to have had him in our lives. 

If you would like to do something in Eric’s memory, we ask that you consider donating to the ML4 Foundation, the Taglit Special Needs Program at the Tucson JCC or the Ronald MacDonald House. If you can’t donate, please consider just doing something nice for someone else.

Thursday, October 22, 2015

Divide and Conquer


Yesterday John and I divided and conquered our world. John stayed home and worked with the contractor and workmen to get the stove in place. On the third day of trying it finally went in. The backsplash is looking pretty good too.

I on the other hand spent the entire day at the Tucson JCC for a fundraiser for Eric's Taglit group for special needs young adults. The good news is that I came home with one less 40 quart bin of handmade creations. We raised a lot of money but I would like to have raised a couple of thousand dollars more. If you were not able to make the fundraiser and would like to help you can go to this secure website and donated directly to the program, https://www.tucsonjcc.org/support/donate .On the pull down menu you will use the line that says Other and that will give you a place to type in Taglit. No donation is too small, every dollar helps. This will be a tax deductible donation in the United States.  Eric and his friends would like that very much.